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The problem I have with self-medication (of ADHD meds or any other substance) is not so much that people are doing it - as you said, it’s a rough world out there, and you do what you can to survive and function.

But - “Medical supervision of treatment” is (or should be) not just a couple of empty words. All ADHD meds can have serious side effects and contraindications that you don’t necessarily know about beforehand or notice by yourself. Discovering your un-diagnosed heart disease by taking amphetamines without supervision and getting life-threatening arrhythmia can just feel like “I’m getting a bit dizzy for a time after taking the meds, no need for concern, I’ll just take it easy” (I know, because I have arrhythmia, and wouldn’t know it if I hadn’t had an ECG, as I barely notice it happening). Medical supervision should catch that kind of thing, that’s what it’s for.

You and I don’t know who reads this and what kind of conclusion they will draw, and what kind of risk assessment they do beforehand trying it out themselves. Giving you the benefit of the doubt that you have done your full research, and are aware that there is a chance you might harm or, if particularly unlucky, kill yourself doing this (especially if you cannot verify the purity of your medication, it could be cut with anything), and have weighed that against the benefits of being able to do work and function better in everyday life, I have no problem with you self-medicating or talking about doing that.

But if you don’t transparently communicate these risks, and how you came to your conclusion that this is the only way for you, it looks to others like an easy way to forgo the harder, non-medical, not-as-effective but also not-as-dangerous ways to treat yourself, implying that everyone can and should do it this way.

And I understand why some communities want to curb that from the get-go. Some rules are written in blood.

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Not for me, I literally don’t notice it unless I know it’s happening right now and “listen” for it.

But I’ve been told by other patients that they feel it as light-headedness or dizziness, may feel their heart pounding or like they can’t breath, or like the heart/body skips a step, and if the arrhythmia exacerbates to fibrillation, people lose consciousness very quickly (and may or may not die if untreated). Maybe that translates to your experience, but I don’t know. Generally it’s described more as a continuous feeling for some time, from a couple of seconds up to hours. But it varies a lot. ECG monitoring helps there.

But my specific arrhythmia were also found quite a long time ago, by chance during a standard exam for sports competition fitness as a child. So for pretty much my whole life I’ve been barred from stimulant and basically psychopharmaceutical medication of any kind, since pretty much all of them can cause or exacerbate heart conditions.

Seeing as I totally don’t notice episodes, a scenario where someone didn’t go to that exam and unsuspectingly walks around with that same or similar heart condition completely untreated, and kills themself by self-medicating and slipping into fibrillation is totally possible.

That said, it’s also not a very wide-spread condition, just a rare possibility. Still, please continue to advocate for yourself to have that checked out!

(Edited for an attempt at brevity)

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A casual community for people with ADHD

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