I recently had to stop taking my vyvanse due to some bad side effects and holy shit I forgot how bad this was. I can’t do anything. I have so much shit I need to do but I sit down to do it and it genuinely fills me with dread. I am just staring at my computer. Even getting to the webpage I needed took hours of convincing. This is horrible, even caffeine isn’t helping. What do y’all do? How do you manage?

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96M

I run on auto pilot most of the time. I can’t forget something I didn’t remember to do to begin with. Double, triple, and quadruple check. The double check to be sure and the tripe and quadruple check because I forgot I’ve already double-checked.

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166M

I don’t. I vaguely function for months on end, eventually get overwhelmed and panicky, then consume excessive amounts of caffeine and giggle to myself till the caffeine crash hits and I’m too tired to think.

Gormadt
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Before I was diagnosed?

Poorly, very poorly lol

It literally felt like I was try to fill a bucket with sand and the only shovel I had was a sieve.

I’d literally have to wake up 5-6 hours before I had to be anywhere just to make sure I could finish my breakfast and coffee before leaving. And then I’d still more often than not finish eating or drinking my coffee in the car on the way.

I feel you on the “Having to stop a med because of the side effects,” before I was diagnosed with ADHD I was diagnosed with anxiety and I tried about a dozen different meds for it ovwr the years before calling that off and just going unmedicated. Funnily enough after my ADHD diagnosis and getting on the meds I am now (Straterra) I’ve only had 1 panic attack in the last year vs one a week or so. And I’m able to start and finish tasks. It’s fucking witchcraft.

ComradeSharkfucker
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It literally felt like I was try to fill a bucket with sand and the only shovel I had was a sieve.

Couldn’t have said it better tbh

DominusOfMegadeus
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16M

And the ‘sand’ is actually really gross used cat litter

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146M

I used to use caffeine but i stopped a few years ago. During the pandemic i went on adderall because i was struggling to help my kids do online school. I stopped adderall because i moved and adhd’d away my therapist.

Mostly i cope with routine. I eat the same foods for breakfast and lunch most days. I work on unmasking and being radically honest about my struggles with adhd to people around me. I setup auto billpay as much as possible and i cycle through the same few hobbies so i dont waste too much money.

I’ve recently found that sleep is very important to my body’s needs. If my sleep cycle is fucked then my symptoms get wild.

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As someone who can’t medicate my ADHD, even with caffeine because they all either don’t help or interfere with my panic disorder which is much, much more debilitating, it is… Not great, but I’ve mostly found a lifestyle that works for me. I’ve found careers that I can handle. Maintaining a household alone is… Very rough under the circumstances but it is what it is.

All that said, HIGHLY recommend staying active enough that you are tired at the end of the day and having an alarm clock with a bright light on it, or a dawn simulation ideally with smart lighting, a special alarm clock, or a diy solution with a full spectrum lamp and an aquarium timer (guess which one I did during college). Maintaining a good schedule and waking up in the AM feeling at least reasonably well rested is paramount, everything else goes to hell if that isn’t maintained, and if I’m not physically active during the day, no amount of melatonin will get me to sleep within a routine.

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36M

Light alarm clock sure is a game changer. Isn’t there something that is primarily an anti-depressant, but also works with panic disorder and ADHD? I just know that there are many where 2 of the 3 overlap. But sure, a stimulant would be bad for you.

I have strangely also been in states, over years, where caffeine induces panic. In hindsight, it might have been as simple as a magnesium deficit, but no doctor bothered to check.

I’ve even had benzo prescriptions over years, and cut it down to 0 with relatively high magnesium supplements. Not saying it is the same in your case, extremely unlikely even, just the general concept that something has been missed.

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Pretty sure it’s bupropion.

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36M

Thanks, hope that helps OP! Paroxetine also comes close, at least. Prescribed against both depression AND anxiety. My feeling that it works against ADHD is anecdotal, though, as it started a massive productivity phase with no problems to balance workout, family and a challenging job, but one quick search finds this: https://pubmed.ncbi.nlm.nih.gov/16669726/

Paroxetine had no effect on ADHD.

DominusOfMegadeus
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Have you been able to try Adderall? The only thing ever found helpful besides caffeine is coffee fruit extract. It’s the active ingredient in Neuriva for instance, but there are alternatives online as well. It’s not a great improvement, but it s something I think.

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136M

Chaining dozens of coping methods together helps a little bit, including:

  • strictly working with lists. When I do it and it’s not on the list & checked off, it doesn’t count as done. What’s not on the list doesn’t get done
  • implementation intention: Since my brain refuses “must do now” situations, use a trigger like: “If it’s not done by 8 p.m., work on it with a stopwatch for 15 minutes”
  • for the list, turn everything into a module. Instead of “do the kitchen”, have subitems like “collect all garbage”, “sort by food / non-food”, “clean surface 1/2/3/floor”. For studying & work, a module is always 25 or 50 minutes of full focus, no distractions. When I have to get up to get water or pee, it counts as failed and is not checked off

Yay, life on hard mode.

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46M

Those are some top tier gamifications

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36M

Thanks! For my kid, I gamify it up a notch: His life works on “quests” such as 10 minute room cleaning, letter to a grandparent, 10 minute reading, homework etc., for which he gains loot boxes. Those are little physical boxes containing a made-up currency and other small rewards such as candy, 5 cents - $ 1 real money (his only way to get allowance!), stickers etc. The made-up currency can buy prices such as puzzles, books, toys. About 2 - 3 times per year, there is a legendary coin in it which can be traded for a huge price worth $ 50 - $ 100.

Not sure if saving him or messing up his reward system, but the stuff gets done and he’s doing great!

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66M

I was on vyvanse for years. And I slept about probably 4 hours a night on average. I had to go to adderall. It doesn’t work as well, but it does work, and usually I can sleep.

I should never be off meds.

ComradeSharkfucker
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I had insomnia before taking vyvanse… it has not got better I must say

Tiefling IRL
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THC, caffeine, and more caffeine

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16M

Lots of coffee in the morning and thc at night is the only way for me. I walked away from actual medication years ago because I couldn’t afford it anymore.

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66M

I suppose I cope by having almost 40 years of coping mechanisms that I use to keep me mostly okay. I let my mind fugue in the morning when I wake up. I have a routine that I try to stick to. I have a job that allows me to hyper focus on problems and get the dopamine hit from solving those problems. I don’t have to interact with others for the most part to do my job. I spend a lot of time at home, use ear plugs, or headphones etc. if I can’t make my mind focus I try to do something else. I take breaks. I set alarms for just about everything. And reminders. So many reminders. I also have a very supportive partner. I’m sure there’s other stuff I had to learn to do to mask that I’m forgetting. But for the most part things just work because I put a lot of work into making them work and even then I am not always successful.

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36M

Only way to get through dread is to go through with it. If you want something to stop, finish it. I have pretty light adhd, but for me it was like steeling my mind before base jumping. Sometimes you don’t want to do something. You’re scared or tired but you must FORCE yourself to do it. I have a mantra that kind of helps me. I tell my self that I must do what must be done. And kind of make the action feel like it is inevitable like I will do it even if I don’t want too.

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Poorly. I’m unmedicated and trying to get on meds.

DominusOfMegadeus
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Are you in the US? What difficulties are you running into?

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66M

My current psychiatrist doesn’t want to prescribe me any stimulants because of the potential for abuse. For the record, I have no, uh, record of drug use. I don’t even fucking drink. I get the caution, but it’s deeply frustrating.

DominusOfMegadeus
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I found my current awesome psychiatrist at growtherapy.com. It took me a couple tries; I honestly don’t know how the first one still has a license to practice. No problems getting Adderall after that (other than the ridiculous hurdles the pharmaceutical industry has put in place). The behavior you are describing from your current psychiatrist is exactly the shit I was trying to avoid, and I spelled that out clearly in my first appointment with my current psychiatrist.

Gormadt
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116M

I wish you the best of luck, it took me years to get the right diagnosis and then about 7 months to get the appointment with a doc to prescribe me some meds.

Hopefully your journey is smoother than mine was.

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66M

Thank you. It’s… a bumpy ride, lol.

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16M

Marijuana

ComradeSharkfucker
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Normally I would agree but I am in college and have to do math 😔

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56M

May I ask what side effects? I’m on vyvanse 40/d and love it.

ComradeSharkfucker
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Its a bit embarassing lol but I guess its fine. I was one 70mg and noticed somwtimes it’d be hard to pee, like I really had to strain and all I got was a week stream that cut in and out sometimes. For a few months I said fuck it I guess its a shitty side effect I will have to deal with being at such a high dose so I just ignored it and went on with life. Then a few days ago I felt some pelvic pressure around the bladder and began to leak semen. Like just a dribble but definitely not something I want and the pelvic pressure was pretty uncomfortable. This all occured around the peak of the meds. My guess rn is that I have an underlying issue with my prostate that is exacerbated by these meds for one reason or another. I also lost a 6-10 lbs over the summer (pounds I needed tbh I don’t weigh a ton) which might also have something to do with it.

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76M

Damn brother, sorry to hear that. When I was on straterra I had some similar issues. Leaked semen, and a couple of times right after I started taking it there was blood in the semen (???). It was not a good medication for me, but many people do well on it.

Wishing you the best in finding something you replace it.

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56M

This was my experience with the generic atomoxetine as well, but without the blood which would definitely freak me out. That, wild constipation, heart palpitations, and somehow more brain fog. The dependency warnings with stimulants worries me, but I just started on 40 Vyvanse after testing 20. Fingers crossed.

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36M

Maybe take less? Sometimes less is more. It was for me.

ComradeSharkfucker
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26M

Gonna try taking less tomorrow and see how it goes

@[email protected]
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16M

Are intending on just splitting open a capsule? Because a consistent dose will be hard to attain that way

ComradeSharkfucker
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I am splitting the capsule and I know people with pretty precise scales I can borrow but honestly getting a consistant dose is less of a priority than getting my work done. I’ll take what I can get

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26M

Good luck.

ComradeSharkfucker
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36M

So far so good. I can piss just fine on 40mg

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16M

Good to hear it. That’s closer to the dosage I’ve settled on.

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16M

That sounds more like an atomoxetine side effect than lysdexamfetamine. Weird. I would suggest to get your prostate looked at.

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146M

I recently had to stop taking my vyvanse due to some bad side effects and holy shit I forgot how bad this was

FYI you are probably also dealing with withdrawal in addition to being unmedicated. Getting off of meds after having been on them is a very different experience from never having been medicated.

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